Rachel Minnick, CISCRP
Phone: 617-725-2750 x330
The Center for Information and Study on Clinical Research Participation (CISCRP), an independent nonprofit organization, today announced the release of the results of the 2017 Perceptions and Insights Study. The study ― one of the largest ever conducted ― gathered responses from nearly 12,500 people worldwide on topics including general attitudes and perceptions about clinical research; experiences before, during and after clinical trial participation; and perspectives on new initiatives to improve study volunteer engagement.
“We’re very pleased with the strong response to our latest global assessment,” said Annick Anderson, director of research services at CISCRP. “We’re now preparing and publishing reports and manuscripts to share the findings broadly to encourage discussion of their implications.”
The study’s key findings include wide variations in public attitudes and perceptions across disease conditions, race and ethnicity, geographic regions and age. The European public, for example, continues to show the most negative attitudes about clinical research. In addition, although the majority (82 percent) of those surveyed self-report feeling knowledgeable about clinical research, the depth of that knowledge is superficial. Half are unable to name a place where clinical research is conducted and 62 percent of the public are unable to name an agency that oversees clinical research safety.
Study results also highlight the critical role that health care professionals play in facilitating patient engagement in clinical research. Doctors and nurses are the most trusted and valued source for information about clinical research. They are expected to be aware of and to introduce appropriate clinical trials to their patients, and are the most sought-after advisers influencing a patient’s decision to participate in a clinical trial.
Patients and the public in select subgroups also indicated high preference and receptivity to learning about and participating in clinical trials during regular visits with their doctor. Six out of ten (62 percent) people in North America, for example, indicated that the integration of clinical research and clinical care would be “very convenient.”
Acurian, a major clinical trial patient enrollment and retention solutions provider, collaborated with CISCRP on the survey for the third consecutive time. “We are so pleased to have leveraged our market-leading recruitment database to collaborate again with CISCRP on this critical initiative,” said Scott Connor, vice president at Acurian. “The new insights from the study will enhance patient engagement strategies, and the results will provide valuable input into recruitment and retention planning and execution.”
Since 2013, CISCRP has conducted the Perceptions and Insights Study on a biannual basis to assess public and patient perceptions of clinical research, motivational factors for joining a clinical trial and participation experiences. CISCRP publishes these reports on its website for free so that the research and health care community can learn from them. CISCRP also invites the academic research community to analyze the study data. To find out more about this study and to download the detailed reports, please click here.
The Center for Information and Study on Clinical Research Participation (CISCRP) is a 501(c)(3) nonprofit organization dedicated to engaging the public and patients as partners in the clinical research process. CISCRP provides free education and outreach to the public and patient communities. CISCRP also provides services to assist clinical research professionals in their public and patient engagement efforts. Visit www.CISCRP.org for more information or to support CISCRP’s educational initiatives.
Acurian, a subsidiary of PPD, is a leading full-service provider of clinical trial patient enrollment and retention solutions for the life sciences industry. The company increases the enrollment performance of investigator sites worldwide by identifying, contacting, prescreening and referring people who live in the local community but are unknown to a research site. As a result, trial sponsors complete enrollment without incurring the unexpected expense of adding sites or time. For more information, visit www.acurian.com.